Participate in a Research Study
Dr. Ciaran Kelly, MD, at the BIDMC Celiac Center, is looking for biopsy-proven celiac patients (18-80 years old) who have been following a gluten-free diet but still have symptoms to participate in a research study.
This clinical research study is designed to evaluate whether taking digestive enzyme supplements can help reduce persistent symptoms in patients with celiac disease who are following a gluten free diet.
What will happen:
- Up to 40 days participation from first study visit to last study visit
- Blood work and visits with our doctors & dietitian
- 3 visits at Beth Israel Deaconess Medical Center in Boston
- 34 days of study medication
- Weekly surveys
- Daily stool log
- Phone calls once every 2-4 days
- Parking in the BIDMC garage is covered
For more information, please contact:
Dr. Ciaran Kelly, MD
BIDMC Celiac Center
Now Dedicate Donations
Would you like to dedicate donations “in memory of” a friend or loved one? After completing a donation, you may download a PDF receipt of your donation record to save for tax purposes. As always you can choose the amount you wish to donate!
Coming soon are donation subscriptions allowing you to setup recurring automatic donations and NCA e-cards so that you can have a card sent via email to those you have donated on behalf of.
Your donations are critical to helping us achieve our mission and even more important than ever now that we have expanded nationally!
GF Dining Out
- If you dine at Chipotle, please be aware that some branches are now offering a fried dessert, buñuelos, that contains gluten. At those branches, the corn tortilla chips will be contaminated due to being fried in the same fryer with the buñuelos. Read about it here.
- A member reported that The Daily Paper is now in the spot where Perry’s used to be on Main Street in Hyannis, MA. This breakfast and lunch place lists on its menu GF English muffin and GF waffles, but they have one waffle maker and they toast the muffin in the same toaster as bread with gluten, so clearly there will be cross-contamination here.
- A member shared a story highlighting one frustration around eating out with celiac disease: a lack of communication among the restaurant staff. Here’s her story:“I go to a casual place for lunch, where you order at the counter. I clearly tell them I have a gluten allergy. I order a salad. I tell them no croutons. My friend also orders a salad. They bring hers first. It has a piece of bread on it. So I say to the server: Mine shouldn’t have bread on it. I am gluten free. She returns one minute later with my salad — with a piece of bread on it. I send it back and tell her she just can’t remove the bread. She asks me: We have GF bread. Would you like that?Lack of communication: The person who took my order didn’t tell me the salad came with bread and didn’t tell me there was a GF bread option; the person who made the salad didn’t get the message (or care) that there was a gluten allergy, and also didn’t question whether I should have GF bread, and the person I told not to give me bread didn’t offer me GF bread until after bringing me the salad with regular bread!”
- Many thanks to those of you who have added your favorite gluten-free or gluten-free friendly restaurant to our database. Do you visit a restaurant we don’t know about? Help us to expand the directory by adding your favorite GF friendly restaurant here.
- Remember you are your own best advocate and must take care to ensure that the kitchen staff understands your needs. NCA members, you may wish to log in to the member area of the website to review the Dining Out Information.
Webinars and Podcasts
- Listen to Dr. Dascha Weir from Boston Children’s Hospital Division of Gastroenterology as she explains the difference between celiac disease and food allergies
- Here is a podcast about celiac disease with Peter Green, Director of Celiac Disease Center at Columbia University.
- Here is a video review of 10 GF pancake mixes.
- Also playing on PBS, you can watch Gluten Free here.
- GF Jules recently did a podcast about a new study that found that gluten removed beer may not be safe for celiacs.
- Here is an article and video about how eating can be an everyday struggle for celiacs
- Gluten Free and More published this list of new Gluten Free Products; have you tried any of them yet?
- A member found these delicious Marlenka Honey Cakes in a local Armenian grocery store, but we hear it is also available online at Amazon.com.
- A member found a GF cheese pizza with a cauliflower crust at Trader Joe’s. She likes the GF cauliflower crust especially for making quick flatbreads and is looking forward to trying the pizza.
- Costco has a list of new GF products, which includes rice, soups, pastas, cereal, salad dressings, dips, salsa, sugar, flour, bread, cookies, chips, snacks, protein powders, bars, shakes and other foods. Visit your local store for more information about what they carry since selection varies by store.
Congratulations to Barbara W. of Lawrence, KS, who won the July giveaway of Murder Gone A Rye by Nancy Parra.
- This month, you can win a copy of No Sacrifices Entertaining Gluten-Free by Ellen Fox.
To enter, simply send us an email with your name and mailing address by June 17.
Celiac Disease and GF in the News
- An article in the Lancet about celiac disease may be found here.
- Researchers investigated the contents, claims, and disclaimers of 14 glutenase products designed to ease digestion of gluten. Here is what they found.
- Is Buckwheat Gluten-Free? Gluten Free and More answers the question here.
- An Italian study determined that a lot of children with biopsy-confirmed celiac disease did not have sky-high celiac antibody levels prior to diagnosis. Here is an abstract.
- The latest Center for Celiac Research and Treatment newsletter from MassGeneral Hospital for Children is out. You can read it here.
- As students are thinking about heading back to school, Gluten Free Living has an article about Gluten-Free Dining Halls here. Oh and don’t forget to download our college survival guide!
- A restaurant asked an 11 year old who cannot eat gluten and had travelled there with classmates on a field trip, to leave and eat the food he had brought with him outside. Read about the ensuing lawsuit.
- Here is an article about cross contact from Beyond Celiac.
- Persistent gastrointestinal disorders that are common in patients with celiac disease following a transition to a GF diet are detailed here.
- More about the statement from the Vatican requiring low-gluten communion wafers rather than gluten-free can be found here. Following the statement from the Vatican, the Benedictine Sisters of Perpetual Adoration, who create a low gluten communion wafer, issued this statement.
- Information about how celiac disease can affect your oral health can be found on CDF’s website here.
- Sarah Ahmed discussed Oral Manifestations of Celiac Disease at the Medical Myths and Milestones Symposium we held in April. See the PDF from her presentation.
- Gluten-Free Watchdog is encouraging the FDA to investigate when products labeled gluten-free appear misbranded; here’s how you can help.
- Celiac and the Beast tested almost 80 types of GF breads and came up with this top 10 list. You can learn about the testing here.
- A GF rice flour plant will be opening in Arkansas.
- Here is a research roundup from Gluten Free & More.
Gluten-Free Seal Recognition Program
Following the dissolution of CSA earlier this year, NCA will be continuing the valuable Gluten-Free Recognition Seal Program. When products display the Recognition Seal, customers are assured they are choosing a product which has undergone the most stringent third-party gluten-free certification available for product, processing and packaging.
Live GFree Gluten Free Classic Soft White Hamburger Buns
Live GFree Gluten Free Classic Soft White Hamburger Buns are being recalled due to a packaging error. Gluten Free White Bread was packaged into Gluten Free Classic Soft White Hamburger Bun packaging and contains undeclared egg. The recalled LiveGfree Gluten Free Classic Soft White Hamburger Buns were sold through ALDI stores from April 13 to July 27 in the following states: Arkansas, Washington D.C., Iowa, Illinois, Indiana, Kansas, Kentucky, Maryland, Missouri, North Carolina, Nebraska, Ohio, Oklahoma, Pennsylvania, South Carolina, Texas, Virginia, Wisconsin, and West Virginia.
Read about the recall here: https://www.fda.gov/Safety/Recalls/ucm569131.htm and contact Jenene Kilian from Vibrant Health Products at (604) 743-4455 with any questions about this recall.
Bush’s Baked Beans
Bush’s Baked Beans (Brown Sugar Hickory, Country Style and Original in 28 oz cans) have been recalled due to potential contamination with harmful bacteria.
Read about the recall here https://www.fda.gov/Safety/Recalls/ucm569061.htm or on the Bus’s Beans website at www.bushbeans.com
Consumers who have purchased the recalled products are asked to call Bush’s Consumer Relations at 1-800-590-3797 between 8:00 a.m. and 5:00 p.m. Eastern Time, Monday through Friday for instructions.
Matcha Vanilla Oats
Matcha Vanilla Oats, in a 1.8 oz cup, has been recalled due to potential contamination with Listeria monocytogenes, an organism which can cause serious and sometimes fatal infections in young children, frail or elderly people, and others with weakened immune systems. The recalled product is marked with the Best Buy Date Code of “SELL BY MAY 11 2018” on the bottom of cup.
Read about the recall here:
Consumers who have purchased 1.8 oz. cups are urged to destroy the product and bring the purchase receipt to the place of purchase for a full refund. Consumers with questions may contact Blue Marble Brands at (888) 534-0246, M – F between 9 am and 5 pm, or at www.woodstock-foods.com.
Biohealth Precision Blend Cookies & Cream
Biohealth Nutrition has recalled Precision Blend Cookies & Cream (2-lb and 4-lb white plastic canisters; all lot codes) due to undeclared wheat.
Coborn’s Gluten Free Fudge Brownies
Coborn’s Inc has recalled Gluten Free Fudge Brownies (Expiration July 10, 2017) because some of the packages may contain Gluten Free Chocolate Chip Bars and, consequently, contain undeclared milk. The recalled products were distributed and sold at Coborn’s and Cash Wise stores in Minnesota, North Dakota and South Dakota, as well as Marketplace Foods stores in Wisconsin, and Coborn’s Delivers in the Twin Cities Metro area. Read about the recall here: https://www.fda.gov/Safety/Recalls/ucm566340.htm
Nourish Snacks is re-launching its product line and this new portfolio of snacks will no longer be certified gluten-free. While each variety is naturally gluten-free in the ingredients used, the products will not be certified as such. If you have any questions about this change, please contact Kaley Gibson at email@example.com
Recipe of the Month
This recipe is adapted from a recipe from “the Chew” TV program. Easy and delicious!